Today everything was poorly organized at clinic (too many sick kids at the same time!) and we had to wait until 11:30 am for Leo to get his chemo and that had to run over 2 hours. In the meantime we got his blood results: ANC surprisingly was at 1,100 and his Hg down to 7.2 again. We will go back for a transfusion tomorrow morning at 9 am, as they couldn’t get it ready on time for today; oh well, it seems like it was enough hospital anyway! This time everything will be ready for him and we won’t have to wait. He might also get platelets as his level was pretty low; we will test him again in the morning and we will go from there.
We were told this morning that 50% of kids end up starting the maintenance phase just a week after they are done with this very last phase, and since Leo recovered so well so fast we might be starting on the 23d of October! Then we will be able to bring him along to do the groceries, take trips the park and even to the library if it’s not too crowded… we look forward to it, and I think he will readjust to all this very fast! 🙂
We just came back from clinic and Leo is taking his nap; when he wakes up we will take him outside: a nice unexpected break for a few days before he becomes neutropenic again over the weekend! Still, just a couple more weeks to go…
Thinking about you guys and hoping the next few days go well. It’ll be great to be able to have a normal life again in the not too distant future.