Oh what a relief…!




Leo’s ANC was 2,500 this morning and we could tell: he is back to himself, happy, laughing hard and ran everywhere pretty much all day long! A welcome relief after the 5 days of steroids, which are always a challenge for all of us, and the last few weeks when he became so weak. That would be great if he could be stable in maintenance soon and keep that energy level; that way the steroids would also probably become less dragging… 😉

This morning I took him to Temescal Canyon; he hiked on his own for a good hour and didn’t want to be carried at all… We looked at flowers and birds; we also saw a little rabbit! It was really nice and relaxing. Leo looked at roots and was amazed at the shape of the cracked dirt underneath his feet, which he thought looked like leaves… so sweet! 🙂

On Sunday we went to the beach to celebrate Alex’ birthday; the kids really had a great time, and so did we: the weather was delightful, the water still a bit on the cold side but that didn’t stop our little ones for taking some into their buckets to build sand castles! We met Ninon and her family by chance there; it was really pleasant and the kids had fun!

We started his meds again today, half dose for 2 weeks; we will go back to clinic on the 19th and see where he is at. If his counts are stable (and if he doesn’t get sick in the meantime!) we will go up a bit, otherwise it would still be ok to be at 50% until his body gets adjusted to it.

It just feels good! We hope it stays that way for a little while; we really needed a break from this roller coaster!