It has been a while since we wrote on the blog! Leo is doing very well and we were really happy to be able to spend a few days in San Francisco this past week! We went everywhere, Leo had a lot of energy and both were really happy to discover this amazing city. We did a lot over there, we visited a few kids museums and did quite a bit of sightseeing. Charlotte had to see the monuments described in her American girl doll books! 😉 As for us, we mostly got to relax, which was much needed. We took the cable car and the bus a few times; the kids enjoyed it and Leo wore a mask when we felt it was too crowded and he did very well. 🙂

We had a huge bump on the road back in February; we ended up spending a full week at the hospital. It was very scary, Leo went down very fast and it took him a few weeks to recover fully. We kept him away from his activities with other kids for the rest of the winter, as we saw how dangerous it is for him to catch a nasty virus and we didn’t want to go through this twice. We keep moving forward and we hope it doesn’t happen again!

Now that Spring is back and flu season is over we will have him enjoy his activities at Outside the box again and at our local library. It doesn’t seem like he missed any of it though! We kept him busy with a bunch of play dates and various outdoor activities. Leo has now friends his age with whom he plays nicely and laughs a lot! It’s so nice to hear his little voice giggling!:):)

As far as treatment is concerned, we still have a little more than a year ahead of us and we are still trying to figure out the dose of his meds for his maintenance. It seems like every time we reach the 100% there is a problem, which is apparently expected. All of this is quite of an adventure! We keep checking him every 2 weeks instead of once a month, but it feels better like this and we can adjust the meds accordingly.

We will go back to clinic on Tuesday for his monthly chemo and steroids and at the end of this week we will meet other families with kids in treatment at Camp Ronald Mc Donald. Everyone we talked to told us that the experience over there is really heart warming. We will see, but we go with an open heart and we look forward to having the kids spend a weekend full of outdoor activities while we get to relax again as the hospital team won’t be far in case of a problem!

We ended up connecting with other families with other little boys in treatment these past few months; another little one, Alex, 5 years old, diagnosed last year, lives in Santa Monica just a few blocks away from us. All of them are very positive too and the kids are also doing great. We meet them every Sunday morning at a special karate class organized by a great person who is willing to help these kids through breathing, movement and self-control. All sibling are also welcome to join the class. Charlotte got the hang of it and is now ready for her yellow belt! 🙂

Here are a few pictures of our recent trip to SF: enjoy! 🙂