We were told that the last year of treatment would go fast… now we can say that it does!! We “only” have 6 more rounds of steroids and 2 LPs to go through. Leo did very well last week and his lumbar punction results came back clear. We haven’t seen a sign of “bad” cells in almost 3 years now… so fingers crossed until June 15th, 2015!!
Now every 4 weeks Leo gets his I.V. chemo, is on steroids for 5 days afterwards and gets a transfusion of IvIg. The morning at the hospital is just a bit longer but everything goes well and the team over there is always very sweet with our little one… who will turn 5 in January!! The IvIg transfusions have been going well so far and we hope that his immune system will go back to normal soon after treatment is over. We heard that sometimes it takes time and since his is completely destroyed by the whole treatment we will have to see.
Leo has been SO energetic lately and so happy with everything! 🙂 Last month he asked us so many questions about the disease, he felt like it wasn’t fair that he was the only one having it…! The head of the department, Dr. Kempert, took the time to answer his questions and especially the “why did the bad cells come to my body?”; she took it seriously, talked about DNA and all and the next day I had to show him what DNA was… molecular biology can actually be really fun and interesting for a 4 years old!! He truly enjoyed it and was proud of himself explaining it afterwards to Charlotte!! 😉
Charlotte is also doing very well. In her Thanksgiving notes at school the first thing she wrote down was: ” I am thankful for my little brother who is almost done with his cancer”. So sweet… I wonder what the teacher had to say on this pretty deep statement while other classmates were probably thankful for lighter things in their lives! She has been SO supportive throughout this whole process, she has been amazing.
We were thrilled to spend 10 full days with my brother Louis, who came visit for Thanksgiving. We had a lot of fun all together, it was so nice; we ended up spending a couple days in the desert of Joshua Tree, which was also much welcome! We now look forward to going to Red Rock Canyon (Las Vegas) for Christmas to spend time with our Boisvert family. It’ll feel good to relax. We will be back on time for Leo’s next treatment Dec 30th. We will kick in the New Year with hope in our hearts! 🙂 🙂
We will have so much to celebrate this year!!