Since our little one was still neutropenic yesterday we didn’t start maintenance. He was also borderline for a transfusion, but they let his body recover on its own (his cells were on the way up), which we were happy about. We will test him again next Monday to see if we can start next Tuesday. It may even take 2 more weeks, we will see, and in the meantime we appreciate this little chemo break before we start the upcoming months of treatment.

It will certainly be lighter, but still Léo will be on chemo every single day. His protocol is based on a three month cycle: oral chemo everyday, methotrexate orally once a week. Finally, two months out of three he will have vincristine (I.V.) and a lumbar puncture + chemo in the spine. We will repeat it 4 times and then the following year it’ll be a little lighter. We will just have to find the right time to give him his oral chemo, as it has to be taken on an empty stomach… we will figure it out and we will get used to all this. It is a huge relief to have the intensive part behind us and of course we hope it worked and that these cells will never show up again.

Léo is in great shape; he is very active, plays, laughs a lot and he looks forward to Halloween! 😉 We will go to the pumpkin patch as soon as his counts are up, which should be right on time for us to carve a Jack-O-lantern! He had a lot of fun at Charlotte’s birthday last Saturday and he looks forward to seeing his own little friends again soon. A few playdates are already planned! 🙂