Back to 800 and to maintenance tx!

We got good news yesterday, as Leo’s ANC climbed back up as expected… not too much though, only up to 800. We were told that it may take him up to 6 months, since the beginning of this phase, to get used to the meds and be stable in maintenance. This is nerve racking since we were so happy to have him back at the early stage of this phase, but we will get there; it’s a matter of time, this just has been too much and we can’t wait to have a more normal life, to get a chance to forget somehow… if possible! 😉

We are back on everyday oral chemo and antibiotics over the weekend. Since his counts are expected to drop again between now and next week, we need to avoid crowds again: parks are ok if not too crowded, no trips to museums, the beach, markets and malls. At least we don’t need to keep him inside, which is good! If his counts drop again, they will lower the amount of medicine by half for the upcoming month of tx, then slowly climb back up until we reach the dose again. This would give a chance to Leo’s little body to get adjusted to his treatment. At least they have a protocol and know how to handle all this without the threat of a relapse, which is always reassuring! 🙂

Christmas will be quiet at home, just the 4 of us and then we will welcome GrandPa and GrandMa at the end of next week. I am hoping that since he may be neutropenic at the beginning of their stay that we will skip the steroids… which would be so much easier! We will see what they have to say at the next hospital visit Friday the 28th.

Leo has been more tired lately, although he is still pretty active. We mostly go around the block (he walks or takes his bike); this morning he picked up leaves on the ground for an art project at home. He had fun, and mama too! 🙂

One thought on “Back to 800 and to maintenance tx!

  1. Chere Lorene je veux vous souhaiter a tous les quatre un tres joyeux NOEL avec des bisous pour Charlotte et Leo
    Bien affectueusement Michele

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