Little update!

Leo has been in maintenance for a year now and is doing very well. 🙂 He is full of energy and is very active. He loves going to his daily activities and enjoys being home schooled for preschool. He likes his French lessons on Wednesdays with his very nice teacher and his babysitter Emilie is still taking a great care of him. Things have been good and stable, which is what we all need!

He had a good time at his soccer classes and will try hip-hop next week, which might be a better fit for him. Outside-the-box organized activities seem to be his favorite: he is in a nice group of mostly home schooled kids; they do 30 min of storytelling, music, arts and crafts and theater, i.e. 2h all together and our little one looks forward to going there every Tuesday! The music class is especially good over there; they are currently listening to Carnaval of animals and scatting with Ella Fitzgerald! He loves this and has a lot of songs and music in mind! 🙂

As far as treatment goes, we are still trying to find the right dose of medications. It looks like this is going to be like this until the end of the whole deal. He was at 75%/50% and this morning, since his ANC was down to 600 again, they cut the medicin again: 25% (mercaptopurine)/50% (methotrexate). We will do so for 2 weeks until his next clinic appointment, which is scheduled Nov 5th. We were told that the most important is that he takes some medication. It seems like his body reacts to the meds fully, like always… 🙂

We took a trip to Arizona last week; Leo got to meet his cousins from Paris/China for the first time and Charlotte got to see them again after 4 years. They all had such a great time and we hope to see them all again soon!

We are getting more and more confidence in Leo’s treatment success as we are getting further away from the intensive part of treatment. It feels good and we hope it stays this way! 🙂