It’s hard to believe but we are seeing the end of this ordeal…!!! 9 more weeks to go, 2 more chemo IV/steroids treatments and only 1 lumbar puncture with chemo in the spine! We are planning to go all for of us in May for that very last procedure; we will take Charlotte out of school and the we will celebrate!! :):):)
Leo has been doing great. He has been experiencing morning nausea (and the rest! :() though pretty much every morning these past few weeks so we put him on a daily anti-nausea medication. It has helped a lot, which is a relief. For the last couple months we only went to clinic once a month, as Leo ended up being stable in these last few months of treatment and able to tolerate the 100% of the meds… which was the goal since the beginning of maintenance, but never happened!! But apparently the way he reacted to his maintenance is also a good sign, like Dr. Moore told us a few months back.
So, we are just happy and we wanted to share our joy! Leo just spent a couple weeks at home with Alex while Charlotte and I went to France. We all had a great time! Life will slowly go back to “normal”!! 🙂